If you have been following the blog for a couple of weeks, or even a couple of months, you have probably noticed the number of times I've written, I'll ask the nurse. Well several times, no nurse showed up to ask.
I have had to change hospice and I've learned a lot as a result. I think this is information that needs to
be discussed if you are considering or know someone who is thinking about hospice.
First, ask a lot of questions. Not of the hospice being considered, but by people who have used the organization. Find out if the hospice is local, profit or a non profit organization. Another thing to consider is has the service been purchased by a new company, or are they looking for a buyer. Have the people you've questioned used the company recently, or is their experience years old? All of these leads to lots of communications. After you have information about the company being considered, then start asking them questions.
And make certain you have the telephone number or an easy way to talk to the person in charge. If what the company original said they would do, isn't being done, then you need someone to contact to let them know there are problems. In fact more than one telephone number might be a great idea.
Over the last two months, my support literally disappeared, affecting how I felt. This time I did things a little different. and as we begin our relationship I have a feeling I made a much better choice. This time I have the telephone number of the people in charge. I will use it if things look like things are not going as promised. And I am looking forward to feeling much better with the worry that has had a horrible affect on how I felt.
I can hope my experience will help someone out there.